A digital healthcare start-up based in London Bridge is running a global study with leading UK Parkinson’s charities to learn more about the health of those with Parkinson’s, helping to bridge the six-month gap between visits to the doctor.
Participants are invited to become a citizen scientist, tracking the ten most important aspects of their health for 100 days using the uMotif platform on a smartphone or tablet. Everyone will track sleep quality, mood, exercise, diet and stress levels. Then it’s up to them to choose another 5 aspects of their health that are most important to them.
In return, you can share your experiences and see how everyone else taking part in the study is benefitting on the study website. They’ll be able to gain insight into the factors affecting their own health. For instance people with Parkinson’s may learn about how the time of day that they take their medication affects their motor symptoms such as reflexes. This approach underlies uMotif’s belief that the potential for digital health has not yet been realised and that projects should always adhere to three golden rules:
- A clear benefit for the individual taking part
- The opportunity to contribute to something larger than as an individual
- The data contributed is made to work as hard as possible
The data donated will also contribute to academic research approved by a committee of Parkinson’s charities, helping to unlock new discoveries in Parkinson’s.
This is a world-first, ethics approved, people-centred project of this size and scale in healthcare and open to everyone. So please sign up today, and encourage your friends, family and colleagues to sign up too. They can take part even if they do not have Parkinson’s.
You can be a part of it!
Simply visit www.100forparkinsons.com, download the uMotif app from the Apple App Store or Google Play and enter code 100FP to unlock the study
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